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with Rod Moser, PA, PhD

Stories from behind the examining room door, as told by Rod Moser, PA, a primary care physician assistant with more than 35 years of clinical experience.

Thursday, January 28, 2010

Five Six Friends with Cancer

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The older we become, the more likely we will have friends that will have cancer. In the last year or so, five close friends and relatives were diagnosed with various types of cancer. I am pleased to say that three are "cured", and two are under intense treatment.

Lymphoma: She was in her late fifties; never smoked a day in her life. Her only addictions were her grandchildren, traveling, and Bonsai trees. We were going to go to Europe with them. It would have been our first trip; they have been there many times and would be our guides. A few suspicious lymph nodes appeared in her neck. These were not the painful, reactive nodes we see with sore throats or dental infections. These were hard and fixed. Her doctor didn't like them either and sent her for a prompt biopsy. Once lymphoma was diagnosed, she underwent chemotherapy at a major cancer center. Today, she is in total remission, visiting her grandchildren, and as a Master Gardener, teaching Bonsai classes. Europe will still be there when we decide to go again.

Breast Cancers: She was also in her late fifties; a teacher and my sister-in-law. Because we had to cancel our Europe trip and had the time off, we decided to visit her and my brother. When we called to announce our visit, they had just left the doctor's office. Her annual mammogram showed a possible cancer; a biopsy confirmed it. After her lumpectomy, radiation therapy, and tamoxifen, she is now cancer-free. She hopes to retire this year to have more time to play.

Last year, a WebMD colleague - the person who edits the All Ears blog - also was diagnosed with breast cancer. She has undergone aggressive treatment and she, too, is doing well. She is taking time to walk with other cancer survivors and raising money for more research. I have never met her personally, but shared in her struggle and rejoiced in her remission.

Brain Cancer: It hit him without warning, like a lightening strike. Our best friend was preparing lunch for a visiting colleague when he suddenly lost his ability to speak the words he was thinking. Fearing that he was having a stroke, his wife called 911 (prompted after a phone call to us first). It wasn't a stroke. It was a brain tumor. As a matter of fact, it was the Mother of all Tumors, the Big Kahuna - an advanced-stage glioblastoma, the same tumor that recently took the life of Senator Ted Kennedy.

It has been nearly a year now; a year of brain surgery, radiation therapy, repeated rounds of chemotherapy, a few ER visits for unexpected seizures, repeated MRIs /PET scans, second opinions, and third opinions. He is holding his own right now, spending time with his children, grandchildren, seeing some great shows in Vegas, and enjoying the time he has left. He knows that his prognosis is not good, but still hopes for that miracle. If anyone deserves a miracle, it is George. We are going with him and his wife to the next consultation visit.

Prostate Cancer: He was one of my best friends in college and still is. On a routine examination, his PSA (prostatic specific antigen) was very elevated. A biopsy of his prostate was suggested. It wasn't a routine biopsy, either. The surgeon nicked an artery that would not stop bleeding; he nearly bled to death. Thinking that a person can only cheat death once in their lives, he hoped his biopsy would be negative. It wasn't. His prostate has been seeded with radioactive "rice" (brachyotherapy) and it has worked like a charm. He considers himself cancer-free and has done a long bike ride to celebrate his successful cure.

Lung cancer: I have known Harv for over 35 years. Together, we helped form the California Academy of Physician Assistants (CAPA), an organization that is still thriving with thousands of members. He was a smoker - a heavy smoker. This resulted in some pretty severe emphysema, so he has been on oxygen. Two weeks ago, like my friend, George, he suddenly lost his ability to speak an intended word. It was not those "brain-farts" that we all get from time to time; this was a serious loss of communication. He lives alone now in Arkansas, but knew he needed medical care quickly. A CT of the brain found a tumor; two, actually. A CT of the lung found the source. Harv has lung cancer that has metastasized to his brain. This week, he is undergoing gamma knife surgery, followed by chemotherapy. He is afraid, but is not letting a little cancer slow him down. He is still planning a cruise, going to his Navy reunion, and planning his annual trip to CAPA in October. He said that he was not surprised at getting lung cancer. As an astute medical clinician, he knows the reason, but his addiction to cigarettes was just too strong for him to quit.

As I have mentioned many times in the past, my father died of lung cancer at age 39. He was a smoker, too, compounded by his asbestos exposure in the Baltimore shipyards. He had a lung removed and endured painful cobalt radiation before he died six months or so after his diagnosis. This was in 1957, long before there was a specialty called oncology.

My brother has had a melanoma on his chest in the past. This is puzzling since he does not prance around without his shirt, even though he is a sailor. He, too, is a cancer survivor, cured by removing this early lesion before it caused additional trouble.

We need to take better care of ourselves, at least as well as we take care of our cars. The same people who become worried when they don't change their oil ever 3,000 miles, are really the same people who have not had a physical examination and baseline lab work for years. In the end, we will all die of something - humans do not live forever. Cancer is among us and we need to be diligent on looking for those suspicious signs and symptoms. Detected early and treated aggressively, cancer is no longer the automatic death sentence that it once was. We are slowly winning the battle, one survivor at a time.

FYI: My PSA and lipids are good. I passed my cardiac stress test with flying colors. I recently had a brain MRI for my tinnitus, so I know I do not have an occult brain tumor. My brain-farts are clearly due to something else. I have never smoked. I don't drink alcohol. I am happily married (married men live longer). I wear seat belts. I have no lumps in my man-boobs or moles that are suspect of melanoma.

I do need to eat more responsibly, lose 30-40 pounds to shake my Santa image, get a colonoscopy (so I can blog about it), and get my blood pressure in better control. Knowing what to do is the easy part; doing it is the hard part.

I would like to live several decades after I retire. I have places to go...things to do...family, friends, and dogs to love...patients to see....WebMD board postings to answer...and lots more stuff to write about.

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Posted by: Rod Moser_PA_PhD at 11:46 AM

Wednesday, August 26, 2009

Brain Tumors

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I remember the scene in Kindergarten Cop with Arnold Schwarzenegger where a little boy tells Arnold that he probably has a tumor.

"It's NOT a Toom- A!" Well, sometimes it is.

Senator Ted Kennedy passed away yesterday from brain cancer - a glioblastoma, considered one of the most difficult tumors to treat. One of my best friends, George, was diagnosed with this same tumor about five months ago. He calls it "The Big Kahuna - The Mother of All Tumors". As you might imagine, George has been following Ted Kennedy's cancer fight closely. Kennedy seemed to be doing so good in the beginning, that his progress was an inspiration to my friend. He would tell his doctors, "I want the same treatment that Ted Kennedy is getting."

Like Senator Kennedy, he has been fighting his HMO for the best care. When he woke up one day, his only sign of his occult mass was his inability to remember words. All that came out of his mouth was a meaningless word - "Perkis". Thinking this was a sign of a stroke; his wife gave him some aspirin and called us. Obviously, we had her call 911 to get him to the hospital - STAT. A CT scan was ordered and the mass was quickly spotted. A day or so later, he had brain surgery to remove as much of the tumor as they could. Of course, this is not the full story. George had another tumor, a smaller one that was initially missed. This second tumor is the real trouble-maker right now.

It took nearly a month before he was finally started on radiation and chemotherapy. The radiation course has been completed, and he is now on this second, even stronger, round of chemotherapy. Sadly, this second tumor disqualified him for some promising experimental drugs, and more recently, the location of this second tumor, disqualified him for gamma knife treatment. His oncologists are hitting his brain cancer with round after round of potent chemotherapy agents. His most recent MRI showed that the second tumor has not increased in size - a somewhat promising sign if there really can be such a thing with this diagnosis.

When I heard the news about Senator Kennedy's death last night, my heart went out the Kennedy family, but more so, my heart went out to George and his family. Cancer victims are inspired by survivors, so I know this news will be devastating to more than just the Kennedys and our country.

George is a recently-retired university professor - a brilliant man in all respects. He can converse on just about any subject, including the medical management of glioblastomas. I am sure that he never anticipated doing research in this fringe area five months ago.

George has lost some (not all) of his Sasquatch hair. He is now wearing a hat that he found at the local hardware store that has a large crop of fake hair on the top. Like me; he has a full beard. For some reason, the chemotherapy has not affected his facial hair. The chemo is kicking his butt most of the time, so he is sleeping more, and tends to be rummy after those long naps. However, he is still the same 'ol George with a great sense of humor and a love of life. Of course, as an intellectual and realist, he knows that his life is threatened.

George is spending as much time as he can with his four (adult) children and his four grandchildren. There are get-togethers of some sort nearly every weekend - 4th of July parties, Mexican fiestas, birthday bashes, etc. You name it. George planted his annual vegetable garden with his grandson, Connor, this year. Connor eats most of the tomatoes, as soon as they are ripe.

George loves good food and fine wine. He is a member of a wine co-op and has done his share of grape-stomping over the years. His wine collection is now sitting idle. Wine is not on his "cancer diet". Also banned is red meat, with the exception of lamb (his favorite). A few weeks ago at a dinner at our house, I gave him his fill of New Zealand lamb chops, marinated and grilled to perfection, I might add.

As I write this blog post, I look out at a 12-foot high, hand-carved wooden giraffe standing in my yard. A few years ago, while we were on vacation, George drove a few hundred miles to buy it, and then installed it in my yard. We came home at night, so we didn't see it. The next morning, while I was drinking my coffee, I was startled to see a giraffe staring at me. George and his wife, Claudia, always considered our place to be "in the jungle", and you really can't have jungle without a giraffe.

If I ever have to face a serious health crisis, I hope that I do it with George's attitude and conviction. Ever since I received a letter from John F. Kennedy at age 12 (I wrote him a letter and he responded), I have been a Kennedy watcher and admirer. Our country is blessed with some extraordinary leaders, but sometimes, seemingly ordinary people do extraordinary things. George is, and will always be, my personal inspiration. Life is so precious that not one moment should be wasted. When your life is threatened by a serious health crisis, each and every day becomes even more golden.

We are but a dash in life. We are born on a certain date and some day we will all die. A little dash (-) will appear between those dates indicating the entire span of our short time on Earth. So, while we are alive, we need to do our best to make our precious dash really count.

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Posted by: Rod Moser_PA_PhD at 9:41 AM

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