What It Was Like to Find a Treatment That Works
The year was 1976, and I was 21. My 50-year-old father had died 10 years earlier, after suffering a massive coronary. My only sibling had died in 1975 ...
What It’s Like to Pass a Genetic Condition Down to Your Children
There are as many ways to parent as there are people. But, with rare exception, the one thing we all have in common is the intense desire to ...
How to Protect Your Family When You Have a Genetic Illness
You’ve been diagnosed with familial hypercholesterolemia (FH), the genetic form of severely high cholesterol, which can lead to early heart events or death ...
Early Diagnosis and Putting a Name to My Condition Prevented an Early Death
Some of the best advice I’ve ever heard boils down to this simple idea: Naming something doesn’t give it power, it gives us power ...
What I Wish People Knew About Familial Hypercholesterolemia
“I have extremely high cholesterol without medication." This revelation, which I’ve been making for years, is typically followed by responses like these ...
My High Cholesterol Is Due to More Than Lifestyle Choices
There’s a lot to be grateful for in life, but high on my list is the unlikely story of an early diagnosis of familial hypercholesterolemia, or FH ...