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    Advocacy

    Research in the Hands of Patients

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    I was determined that my disease would never define me or take control of my life. I chose to fight back and I decided to use my experience to help others in any way I can

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    Riding the Rollercoast - But Not Alone

    Rollercoaster

    Having a chronic skin condition has affected my life more than I ever would have imagined. Sometimes my eczema makes me feel like I'm on a rollercoaster ride. No two days are alike

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    How to Save a Life

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    The recent media discussion about suicide ignited by the death of Robin Williams was a stark reminder of the many misconceptions people have about suicide

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    Connecting With Community

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    It’s been almost 21 years since I was diagnosed with Marfan syndrome, a rare disorder of the connective tissue that affects most of the body, including the heart, eyes

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    Taking Back Summer

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    Summer’s finally here, and after the long winter with subzero temps, many people can’t wait to get out and enjoy the

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