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    Living with a Condition

    Why 'Gluten-Free' Doesn't Bring Freedom


    When you’re diagnosed with celiac disease, you’re told to eliminate gluten from your diet. Since gluten is the trigger causing all the trouble, the solution seems simple: cut out the gluten and your symptoms will vanish and you’ll be healthy. Easy, right?

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    Research in the Hands of Patients

    woman typing

    I was determined that my disease would never define me or take control of my life. I chose to fight back and I decided to use my experience to help others in any way I can

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    5 Silver Linings I've Found in My Condition


    Sometimes it’s easy to focus on the negative in having a genetic disorder/chronic illness. But, there are some silver linings too, and it can be helpful to remind myself of those from time to time

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    5 Lessons I've Learned on Disability Leave


    I suppose no one really plans on going out on disability, but I was shocked. I thought I’d have my surgery and then be back to work full time. Little did I know that that would NOT be the case

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    The Turning Point

    woman with butterfly

    Just a few days after turning 25, I started down a journey that I never expected to take in my life. I had struggled with intense and recurring sinus problems for years; and after two unsuccessful surgeries, my ENT suspected that there was a deeper underlying problem

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    Riding the Rollercoast - But Not Alone


    Having a chronic skin condition has affected my life more than I ever would have imagined. Sometimes my eczema makes me feel like I'm on a rollercoaster ride. No two days are alike

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    Connecting With Community

    hands joined together

    It’s been almost 21 years since I was diagnosed with Marfan syndrome, a rare disorder of the connective tissue that affects most of the body, including the heart, eyes

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