Patient Blogs | Crohn's Disease
After 14 Years of Digestive Pain, I Finally Got a Diagnosis

My first onset of symptoms is an experience that I will never forget.

It was 1993, and I had just missed another day of school because my “stomach hurt.” My mom and I had just returned home from an appointment with a pediatrician who did not have any answers for my pain.

I was only 8 years old, but I still remember how scared and confused I felt. Even at this young age, I was experiencing nausea, vomiting, gastrointestinal pain, and regularity problems. Somehow, even though it did not feel like my pediatrician believed me, I knew that something just wasn’t right. But I was a kid, and I did what kids do: I adapted to my situation and learned to live with my symptoms.

Over my childhood years, I played sports and was in my school band, but still lacked consistent school attendance. I was a straight-A student, lettered in volleyball and band, became captain of my school’s bowling team, was a member of the National Honor Society, and tried so hard to just manage symptoms that seemed to get worse with every passing year.

I’d have episodes of good followed by episodes of symptoms that I did not understand, but my pediatrician still did not have any answers for me. Somehow, I learned to just live with it all until I couldn’t ignore it any longer.

In 2006, I was a sophomore in college and started to experience symptoms that kept me away from my on-campus college classes, my part-time job, and my social life. Unfortunately, I had gastrointestinal pain on the right side of my abdomen, nausea, vomiting, weight loss, severe regularity problems, and extreme fatigue. No matter what I ate, it didn’t seem to stay in my body for very long. Even though I tried everything I could think of to get answers (medical appointments with primary care doctors, gastroenterologists, and even psychologists as well as diet changes, extra vitamins, digestive supplements, etc.), I still did not have any definitive diagnosis.

Over the next year, I’d return to my gastroenterologist over a dozen times. I had food allergy testing done that proved that I was allergic to dairy, had my gallbladder removed (also known as a cholecystectomy), and started to follow a strict dairy-free diet. In the fall of 2007, I had my fifth total colonoscopy that finally brought a diagnosis.

I had Crohn’s disease.

During that time, my gastroenterologist had seen intestinal inflammation, specifically related to the ileum, which is a small section that connects the small and large intestine. Through a physical exam, intestinal biopsies, and lab work, my gastroenterologist was able to determine what had been the primary cause of my pain and symptoms for the last 14 years.

It was at that time that I also received the diagnoses of ileitis, gastritis, gastroesophageal reflux disease (also known as GERD), and gastroparesis. It was apparent that my entire digestive system was inflamed and seemed to be working overtime.

Almost immediately, I was placed on steroid medications and was given a stack full of papers explaining medical information about these conditions and a multitude of questions rolling around in my brain. I honestly didn’t know or understand how to put it all together.

It was at this point that I started a lifelong journey with managing my symptoms, balancing health-related appointments and treatments, and researching my own conditions as much as I could.

The following years would bring forth one heck of a battle, both within my own body and as an advocate for my own care. Since that time, I’ve experienced consistent medical appointments and testing, repeated diet changes, and a multitude of recommendations from specialists in the field. I’ve experienced steroid medications, TNF blockers, infusion treatments, and natural alternatives through functional medicine.

Even though it feels like I’ve been through a lot, I do try to stay positive as much as I can. I’ve always felt that if you lose your positivity in these type of situations that you are no longer living your life; you’re only surviving, and no one deserves to go through life in that way.

Even though health problems, especially autoimmune disease and chronic illness, can be very difficult to manage, it is always better to stay positive. It’s not about what you can’t do but what you CAN DO that truly matters.

Photo Credit: Natalia Kosheleva/iStock via Getty Images

Tell us what you think of this post?
0 Like
0 Sad
0 Cheered up
0 Empowered
0 Care
WebMD Patient Blog © 2021 WebMD, LLC. All rights reserved.

Important: The opinions expressed in WebMD Blogs are solely those of the User, who may or may not have medical or scientific training. These opinions do not represent the opinions of WebMD. Blogs are not reviewed by a WebMD physician or any member of the WebMD editorial staff for accuracy, balance, objectivity, or any other reason except for compliance with our Terms and Conditions. Some of these opinions may contain information about treatments or uses of drug products that have not been approved by the U.S. Food and Drug Administration. WebMD does not endorse any specific product, service or treatment.

Do not consider WebMD Blogs as medical advice. Never delay or disregard seeking professional medical advice from your doctor or other qualified healthcare provider because of something you have read on WebMD. You should always speak with your doctor before you start, stop, or change any prescribed part of your care plan or treatment. WebMD understands that reading individual, real-life experiences can be a helpful resource, but it is never a substitute for professional medical advice, diagnosis, or treatment from a qualified health care provider. If you think you may have a medical emergency, call your doctor or dial 911 immediately.

Tina Marteney

Tina Marteney

Diagnosed since 2016

Tina Marteney has lived with Crohn’s disease for over 15 years (and she’s only 35!). She is an education leader, autoimmune advocate, and published writer. She is also a mom, dog mom, and wife. Marteney has made it her mission to help others learn how to live well with illness. She shares health tips, patient stories, and helpful resources on her blog and Instagram. Connect with her here.

Latest Blog Posts From Tina Marteney

How I Parent With Crohn’s Disease

How I Parent With Crohn’s Disease

Throughout many events and circumstances in my life, I have always felt this responsibility for being honest about my health conditions ....

Read more
What It’s Like Having Crohn’s Disease and COVID-19

What It’s Like Having Crohn’s Disease and COVID-19

Over the last 2 years, COVID-19 has impacted everyone in one way or another. We’ve had severe health concerns, medical staffing issues, empty grocery store ...

Read more