Patient Blogs | Deep Vein Thrombosis
What I Wish People Knew About My DVT
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If you've never had deep vein thrombosis, you truly don’t understand that it’s not easy to walk around and do daily activities. The pain from DVT can take over your days, weeks, and even months depending on how long it takes to dissolve. Some people have made me feel like I should be walking by now, but that is not always the case.

The blood in your body is supposed to run smoothly. When you have a blood clot causing blockage, it’s painful because the blood isn’t circulating properly. I have had severe swelling that has lasted for months. Blood clots dissolve when they are ready, but you can still have pain from that.

Honestly, the thought of a blood clot sitting in your body is so scary. The amount of anxiety is overwhelming because you don’t know if your blood clot will break loose to cause you a more life-threatening condition called pulmonary embolism.

People should know that you don’t have to have a blood disorder to get a blood clot. Take it from me, I have seen the hematologist and been tested. No evidence of blood disorders were found. Living with this kind of condition is complicated. I don’t understand what causes my blood to clot. I can’t take or do anything that will put me at risk for deep vein thrombosis because there is a higher chance I can develop a blood clot. Once you get one blood clot, you're prone to getting them.

People have assumed because I’m young and in my early 30s now that people like me can’t get deep vein thrombosis, that it only happens to old people. That's not true. My first DVT occurred when I was 19 years old during my first year of college, and DVT took over. I had to drop all of my classes and I was put on total bed rest. Now, I take blood thinners for life, and it changes how you live daily. Blood thinners affect what you eat, drink, and other medications that you can and cannot take.

There are times when I want to do random things with friends and I can’t, like playing soccer. I have to get permission from the cardiologist. I was not allowed to play because it’s a contact sport. Also, if I decide to take a long trip, I need to consult with my doctor. It's like anything you want to do it has to be talked over with your doctor first.

I wish people understood that DVT is more than wearing compression socks or something that just comes and goes. This condition can cause damage to your veins, and it’s something I think about daily.  

 

 

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Caroline Kelly

Caroline Kelly

Diagnosed since 2007

Caroline Kelly was first diagnosed with DVT 2007. She has had two recurrences since then and has been on blood thinners for the past 10 years. She is passionate about print modeling and fashion shows and enjoys playing soccer and watching basketball.
 

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