How a Chronic Condition Affects Your Identity
Being chronically ill and disabled is a huge part of my identity. Not only because lupus so deeply impacts my life ...
Erica Lupinacci was diagnosed with systemic lupus erythematosus in 2009. She is the co-founder of Suffering the Silence, a 501(c)(3) nonprofit dedicated to leveraging the power of art, media, and storytelling to raise awareness and break the stigma surrounding chronic illnesses and disability. Lupinacci has spoken about life with chronic illness for the Yale School of Nursing, Weill Cornell Medical College, Awesomeness TV, The Mighty, and more. She is an actor and producer living in Los Angeles and most recently co-created & produced Trust Me, I’m Sick, a short docuseries about life with chronic illness. Learn more about her work on her website.
Being chronically ill and disabled is a huge part of my identity. Not only because lupus so deeply impacts my life ...
Traveling with lupus always takes a lot of planning and preparation. Because I never know how I will feel, I have to be ready for any symptom or issue that could pop up ...
Sadly, there is so much of my experience of living with lupus that people do not understand. It’s very hard to comprehend what it would be like to live with a chronic illness ...
When I was diagnosed with lupus 13 years ago, I had no idea what it really meant for my life. Because I had been struggling without a diagnosis for 3 years prior ...
There is nothing more gut-wrenching than the arrival of a lupus flare-up. Sometimes, you can feel it coming and notice the signs and symptoms days or weeks before ...
When I was diagnosed with lupus after a weeklong hospitalization, I was treated with IV and oral steroids. Due to side effects from the medication, I gained about 30 pounds ...