Patient Blogs | Myasthenia Gravis
How I Work and Make Money With Myasthenia Gravis
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I haven’t worked a traditional job since 2020. Like many of us in the chronic illness community, the pandemic drastically changed my life. I went from working as a respiratory therapist to working random at-home positions and trying my hand at self-employment. It’s been a struggle staying afloat financially, but I wouldn’t trade my life now for anything. It’s extremely challenging to work with myasthenia gravis (MG) and I’ve had my share of attempts. Here are a few ways that I’ve made funds. 

It has always been hard for me to maintain a steady job living with MG. In the early days of my illness, I spent a lot of time being admitted to the hospital. My symptoms were very unpredictable and unmanaged, so I missed work and school often. After I graduated, I began my first job as a therapist and struggled physically. Every day that I worked my body ached. I’d cry in my car after my shifts because my legs were so weak and heavy. Working made me miserable, but every day I’d wake at 6 a.m. to repeat. I continued like this for a while until it finally hit me. I wasn’t built for this working life. The pandemic gave me the confidence to quit. 

Take what you love and turn it into a business. That’s exactly what I did. I started my own candle business in 2020 as a way to supplement my income after resigning from my hospital job. I’ve always been a fan of candles and their ability to change the mood in a room, so I became a candlemaker. I love being a business owner and the freedom that comes along with being your own boss. It can get stressful managing everything at times, but that comes with the territory of being the boss. 

I understand entrepreneurship isn’t for everyone. Another option for people who want to be their own boss is independent contracting. I personally have subcontracted remotely and have had great experiences. Some of the perks of doing these contracting-type jobs are that they’re very flexible with scheduling and are at home. It’s always a benefit for anyone with chronic pain or fatigue to have remote work as an option. Instead of working my body to its physical limits, I make accommodations for myself and in the comfort of my home. 

Shortly after my diagnosis, I started a blog. It’s called Ashley’s Anatomy and my main goal was to write about my experiences living with a chronic condition and review beauty products. I didn’t understand how beneficial having a blog would be back in 2018, however, it’s been a huge source of my income today. 

The traffic and exposure from having my blog have opened doors for me to write for other platforms and share my message while getting paid. If you’re passionate about writing, there are tons of sites that will compensate you for freelance projects, revision, and editing work. People will pay for your writings and honestly anything that you create. You don’t have to work a traditional job to make money. 




Photo Credit: Yakobchuk Olena / iStock via Getty Images Plus

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Ashley Brooks

Ashley Brooks

Diagnosed since 2017

Ashley Brooks is a chronic illness blogger and advocate who was diagnosed with myasthenia gravis at 22 years old. She has since dedicated her life to raising awareness about living with a rare disease and helping other people who are living with the same illness find the strength to keep going. Brooks has a bachelor’s degree in respiratory therapy and uses her education and personal experiences to help others. She is passionate about sharing her story, her struggles, and her successes with her community in order to bring hope and support to those fighting their own battles with chronic illnesses. Brooks is also a small business owner. In her free time, she enjoys pouring candles and recording beauty product reviews for her blog.

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