Zainab Alani was diagnosed with generalized myasthenia gravis (MG) at age 15. She had a difficult diagnosis journey, due the rarity of myasthenia, and had major surgery and therapies as part of her management plan. She still takes daily medication to manage her symptoms. After sharing her diagnosis only with direct family members for almost 3 years, she is now committed to raising awareness for her rare condition and the impacts it has on various parts of life. She now studies medicine and aspires to use her platform as both a medical student and MG warrior to raise awareness. She does so through her Instagram page here and her other platforms, which can be found here.
First, I’m sorry. I won’t shy away from telling you that myasthenia gravis (MG) is lifelong; there’s no cure (yet), and the next best thing is good management ....
I remember my diagnosis journey vividly. With all the details I can recall, you wouldn’t think that it had been almost 4 years since ...